Fight for Ford pledges to raise $5000.00 for Spinal Muscular Atrophy Research. Ford Sniezek our son was born a healthy baby and passed all his newborn screening. We were so excited about starting our family and what the future held for our little boy.
As his parents we noticed that he was not meeting developmental milestone and they sought out the help of their pediatrician. Ford’s pediatrician sent Ford and his family to a neurologist at Children’s Hospital in Pittsburgh PA. We saw 3 separate specialist that day, they took Ford’s blood and we left the hospital with nothing more than the doctors telling us we would have an answer in 4 to 6 weeks. When we arrived home Ford’s pediatirican called and said the hospital thought Ford had Spinal Muscular Atrophy which was something that we had never heard. We asked what was ahead of us and the doctor told us that Ford would most likely live 2 years. We chose to drive to Philadelphia and see Dr. Finkel who ran an SMA clinic to get Ford’s diagnosis confirmed. On Feburary 3 2011 our world came crashing down when Dr. Finkel told us Ford did have Spinal Muscular Atrophy type 1. He did not however give us NO HOPE. He told us that children with SMA were living longer with being proactive and fighting.
So after Ford’s diagnosis our family knew that we had to fight for our son and fight against this horrible disease. We became connected with SMA community and learned of Dr. Kaspar’s Gene Therapy program and how promising his research was in finding a cure for SMA. Our family decided to start holding fundraisers that all took on the name “Fight for Ford”. We started our Fight for Ford website www.fightforford.com and we are dedicated to raising awareness of Spinal Muscular Atrophy and funds to help move SMA research in finding a cure and that is why we want to make the commitment to raising $5000.00 for the Gene Therapy Program.