A baby named Avery came into the world about 5 months ago, she was born with SMA, please learn about Avery here www.averycan.blogspot.com ..Sadly Avery passed away yesterday, as you can imagine her parents are devastated. Avery’s dad called me this morning to tell me the news and to say that Avery’s last wish was for Dr. Kaspar’s Gene Therapy program to get into SMA KIDS. You can imagine hearing this broke me up as well…..Please offer your condolences to little Avery’s family and friends. On her blog Avery’s dad said he didn’t want Avery to die in vain and would make sure she didn’t ….well I can speak for the whole community that everyone will know the impact this precious girl had on the world and SMA!!!!! EVERY DONATION THAT COMES IN TO SOPHIA”S CURE FOUNDATION IN AVERY”S NAME WILL BE MATCHED BY AN ANONYMOUS DONOR.. UP TO $500,000.00!!!!!!!!
UPDATE : August 16, 2012 $403,339.07 has been raised in AVERY’s NAME for promising Gene Therapy Research!!!!!!!