Our little miracle, Kennady, entered this world June 15, 2010, weighing 7 lbs 2.5oz and she was 20.5 inches long. During the pregnancy Kennady was VERY active, and when she was born she was a strong baby and was able to hold her head up when lying on our chest. Kennady was full of life and smiley all the time.
A couple weeks after we came home with Kennady we noticed that her left arm wasn’t moving very much. Afraid maybe something happened at birth that we didn’t know about, we decided to closely watch her movements. By her 6 week check-up we mentioned to the doctor that she seemed very “floppy”. Kennady no longer wanted to hold her head up and would cry through “tummy time”. She wasn’t moving her legs very much and didn’t seem to want to move her arms to play much either. Kennady also had fast and heavy breathing. We were expecting the pediatrician to tell us that we held her too much and cuddled her too long in our arms. But, instead of the doctor saying we needed more opportunity for her to play, we were admitted to Children’s Hospital in Milwaukee and found out our little angel had Spinal Muscular Atrophy(SMA) Type I. We had never heard of this disease. We were devastated that our little girl had such a horrible disease and prognosis. They told us it was unlikely she would live to her second birthday. We decided from that point on that we would do whatever possible to make her comfortable and make her feel as special as possible. Her contagious smile lit up the room and our lives every day. Kennady has been an inspiration to us and many friends and family members.
Kennady was a very content baby and rarely ever fussed. She started and ended her day with a big grin. Her favorite things were Mommy, Daddy, Mickey Mouse Clubhouse, the Disney Princesses, the movie “Tangled”, swimming, and playtime. She loved anything that played music or lit up. Kennady got to meet Santa, went to the zoo, and even traveled to Florida to meet Mickey, Minnie and the Disney Princesses in person! We knew our time with Kennady may be cut short, but we promised to help her live her life to the fullest.
There is no heartache like losing your child or seeing them suffer through a debilitating disease like SMA. However, if Kennady could wake up every day with a smile despite any challenges she had, we could wake up with a smile and be positive, too. Kennady deserved a happy environment and we wanted her to know how special she was and that she was the center of our world. Kennady changed our lives forever and taught us so much about loving, living, and appreciating life. She was a perfect blessing and we loved her more than anything.
Just a few weeks shy of her first birthday, Kennady passed away in the privacy of our home. Kennady was surrounded with the love of her mommy and daddy as God welcomed her into His world. We are dedicated to help find a cure for SMA. No child should have to go through what our daughter endured. She deserved to have a long, happy life. Kennady should have been able to crawl, walk, run, jump and grow up to have a family of her own. We find peace that she is with God surrounded by a love that we can only dream of, and we look forward to being with her one day in heaven. But for now we will continue Kennady’s fight on earth. So in memory of Kennady, and in honor of all the SMA warriors and angels, we would like to help fundraise to help find a cure to end SMA. Dr. Kaspar’s Gene Therapy has given us hope that one day there will be a cure for SMA and no child will have their time cut short on this earth due to Spinal Muscular Atrophy.
To learn more about baby Kennady and the events going on in honor of Kennady visit her site. www.kennadysdream.org