The results came back a week later, and in August of 2008, our world changed forever. Peyton was diagnosed with Spinal Muscular Atrophy. At the time we had never heard of SMA, but from what the Dr. told us, it was not good. We were told that Peyton would not live past the age of two, so we were to take her home and love her. Terrified, confused and lost, we went home. Instead of giving up, we, with the help of our family, have also started the fight of our lives!! We are going to fight as hard as we can, until the cure is manufactured.
Peyton has had many ups and downs over the past two and a half years. She has been hospitalized three times for respiratory illness. She has lost her ability to swallow, so she had to have a feeding tube put in her belly. Her muscle weakness continues to worsen, and it has also greatly limited her ability to speak. Her list of daily machines has also grown. Cough assist, bi-pap, and the pulse ox, machines are just a few of the them that are necessary for her.
While everyday, Peyton struggles and faces all these challenges, she also smiles!! Peyton is a feisty little girl, who loves her parents, and big sister. She wants to play Dora and watch movies. She is just trapped in her own body. Peyton and so many other children are affected by this rare genetic disorder.