On April 21st 2009 the perfect little girl, I had always dreamed of , was born into our life. All her test came back perfect, so we headed home. Over the next couple of weeks she was doing great. At 2 1/2 months are family had noticed she was not moving that much. I remembered my son moving a lot by this age. I thought she was just extra chubby and maybe a little lazy but I called her pediatrician and he said to take her to children’s hospital. After a couple of days of testing the told us they had felt it was Spinal Muscular Atrophy. And that we should take her home and love her and make memories with her. We kind of thought we know what was going to happen because one of my husbands cousins had a little boy who had this. He became an angel at the age of 6 months. So we were so scared about everything. But today Emma will be 2 in a couple weeks and in my heart I can’t give up because she hasn’t. I have so much Faith that there is a cure or treatment and we just need to keep working. So that is why I want to raise the money because I know we can help all of these wonderful children.
~The Banach Family