Thank you Turnbull Family!!!!
Born a healthy baby, Stella suddenly lost most muscle tone on her one month birthday. After extensive testing at Mayo Clinic in Rochester, MN, the neurologist came into the room, sadly looked at us and said, “It was worst case, Spinal Muscular Atrophy.” We begged to know what we could do to help our sweet girl and she smiled at us and said, “Love her. Being diagnosed this early, she has weeks, maybe months to live.”
After leaving the room, we sat there clinging to Stella, not wanting to let go. We sobbed and talked about how she wouldn’t ever see her first birthday, wouldn’t get to go to Disney World, and wouldn’t see her high school prom. As tears streamed down our faces as we rocked her, it hit us that Stella saw us crying and looked concerned as if to say, “Are you giving up on me?” From that moment on, I knew in my heart that I would NOT give up on our precious girl until God showed us a different plan for her.
Since then, Stella has not only seen her FIRST birthday but also her SECOND, THIRD, and celebrating her FOURTH birthday now! She is about to embark on her SECOND trip to Disney World and we continue to have hope that she might see her high school prom as well.
It is important to us to support Dr. Kaspar’s incredible research because it holds real hope for Stella, the first real hope we have had for our angel. Please support treatment for SMA because you really can make a difference!