Welcome aboard and thank you TEAM KENNEDY….

Welcome aboard and thank you TEAM KENNEDY….

 

Team Kennedy was formed on September 9, 2011 when our then 9-month old daughter was diagnosed with Spinal Muscular Atrophy, Type 1.  The diagnosis was devastating.  All our hopes for our daughter’s future were gone in an instant.  But that did not mean we were going to stop living.  Every day with Kennedy is special.  From her big, gummy smile (she just got her first tooth this month!) to her playful, teasing nature, she continually makes us laugh and appreciate the gift of life.  We have learned that a bath with your big brother can bring great joy; that a walk outdoors (in a very fancy, specialized stroller) can bring to a child what she cannot bring to herself; that touch-and-feel books are extra special; that watching birds from the backyard swing is heavenly; and that watching Mommy dance around to Michael Jackson is downright hysterical.  You do your best to allow no moment to be lost when your child has a terminal illness.

Kennedy is a strong type 1, and for that we are grateful.  But there are no guarantees with this disease and we do not take anything for granted.  While we are committed to living each day that we have with her to the fullest, we are also committed to not going down without a fight.  The cruelty of this disease is beyond comprehension.  And it must be ended.

We have committed to raising $10,000 for Dr. Kaspar’s gene therapy research.  We believe in Dr. Kaspar and his team, and we hope with every ounce of our beings that the results he finds in humans are as extraordinary as the results he has found in his lab.  We are ready to help make a miracle.  ~TEAM KENNEDY

Please visit us at www.TeamKennedy.org, where we will have information about all of our fundraising events, including our first project, “Quilt For A Cure.”  If you, or anyone you know, would like to donate a new, hand-made quilt to be auctioned on ebay, please contact mimi@teamkennedy.org.